Conversation with MND Association volunteer Lesley Connor

For this year's Global MND Awareness Day (June 21), MND Association patron

Eddie Redmayne had a chat with Lesley Connor, one of the remarkable volunteers

of the charity. In the conversation, he discovers Lesley's 20-year journey, some of

her invaluable roles, and the impact she's made on those affected with MND. (x)

Eddie has been working for the MNDA for about 10 years since he made The Theory of Everything.

"I met a man called Glenn Phillips when I was preparing to do The Theory of

Everything. I went to the Queen's Square Neurology Clinic and spent time meeting

- and was introduced to families. There were many extraordinary people that I met

but I will never forget Glenn, who was a sort of academic in film. He just had

such a vibrancy to him and a kind and overwhelming courage at the moment..."

Eddie went beetroot when Lesley said she was the lucky one chosen to talk to him

and praised his work for the association.

"It's so much interestingly for me about awareness and I agree with you like that has shifted and changed. Certainly, I remember wen just after The Theory of Everything there was also the 

Ice Bucket Challenge moment (1) (2) and there was, but it's about retaining that awareness because

I think for you and me it feels like that was only yesterday, but actually, the years do move on..."

My screenshots from the video.