Friday, June 10, 2016

Fresh Breath - Introduced by Eddie Redmayne

Throughout June MND Association are sharing stories of real people whose lives have been, or will be, cut
short by motor neurone disease. Read more here.
As part of the MND Association's Shortened Stories awareness campaign, Robert wrote and recorded a poem
based on life living with motor neurone disease. Oscar winning actor and Association Patron Eddie Redmayne described the poem as 'beautiful'. In this video, he introduces you to it. You can read Robert's full story here


"...June is MND Awereness Month...and I was wondering if you would watch this video to gain a sense of
what Motor Neuron Disease is and get some sort of idea of what it's like to live with this brutal brutal disease.
Please do what you can to support those people living with the disease. It is incredibly brutal illness, and one
very close to my see you later"

screenshots and gif made by me

"I was delighted to highlight this beautiful video about Robert and his young family as it's important to raise awareness of this brutal disease...I want as many people as possible to watch - and share - the video, so that understanding of MND will be greater in the future." - Eddie Redmayne

Fresh Breath by Robert Davidson
One year since my diagnosis,
And inhale,
I have no conditions,
I am right now,
Before I planned,
Insatiably yearning,
Living for tomorrow,
Aspiring to be a senior partner,
With grandchildren sat on my lap,
Finally I am present,
Not guessing whether I will outlive the cat,
Without the futile fear of being trapped,
Looking no further than the horizon,
I will not imprison today,
With tomorrow's cells,
Nor gift wrap caged memories,
Let later wait for the here and now,
Here there are no splinters,
Now I am off the conveyor belt,
Hopes and dreams are no one,
Don't let the moment pass,
There is never enough time,
And exhale

Related posts:
Eddie deepens his support for UK MND Association
Who helped portraying Hawking's disease? - Mr. Phillips's story - Katie Sidle interview
ALS Ice Bucket Challenge 2015 - Eddie's done it again :)
ALS Ice Bucket Challenge - Eddie with Jamie Dornan
Eddie in Intel Labs - Q&A with Stephen Hawking - James Marsh interview
Lou Gehrig Sports Awards Benefit 4 November 2014 NYC
To support the MNDA and Highbury Grove School visit
BBC Documentary - Dara O' Briain Meets Stephen Hawking (2015)
Wired screening with Eddie and Stephen Hawking on Dec 10, 2014
Tumblr posts

1 comment:

  1. Motor Neuron Disease is an incurable disease destroying the body’s cells which control movement causing progressive disability. We are very excited about the results which have given us some new ideas for Motor Neuron Disease Treatment strategies which may help to slow disease progression in human MN.


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